A Tulsa teenager has been diagnosed with a rare condition called Ehlers-Danlos Syndrome. The disease can cause one to lose ...

Filmmaker Andrew Abrahams addresses these issues in his new documentary “Complicated,” which is a World Premiere at the Slamdance Film Festival. The film follows a group of families and their children ...

A woman who was told for years that symptoms were anxiety or just in her imagination lost 20lbs because of the nausea caused ...

Soph Myers-Kelley and his mom, René Myers, got diagnosed with the same connective tissue disorder one year apart. What happened next was a process of learning together — and getting glimpses into the ...

Rare diseases (RD) are more common than you might think. For every 20 people you know, one is likely affected by a rare ...

Everything to know about Rebecca Yarros, the bestselling author of 'Fourth Wing' and the Empyrean series. Here is a complete look at her life.

Jonathan Rivera had to get his foot, and part of his leg, amputated in January. Rivera lives in Florida—one of ten states ...

Around 2017-2018, Gudas started having complications that led to a diagnosis Crohn's Disease, amplified pain syndrome, and then Ehlers-Danlos syndrome. She is currently residing at Children's ...

High-throughput genetic testing identifies 25% more rare disease risks, empowering families with early detection & prevention. Learn more this World Rare Disease Day!

Ellie Henry from Milton Keynes developed Ehlers-Danlos syndrome - a connective tissue disorder – as a teenager. "I hope that more people with disabilities try skiing – it really is something I didn't ...