'Doctors said symptoms were in my head, but I knew they were wrong'
A woman who was told for years that symptoms were anxiety or just in her imagination lost 20lbs because of the nausea caused ...
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Tulsa teenager diagnosed with rare disease; asking for help funding dental surgery
A Tulsa teenager has been diagnosed with a rare condition called Ehlers-Danlos Syndrome. The disease can cause one to lose ...
High-throughput sequencing genetic testing identifies 25% more rare disease risks
Rare diseases (RD) are more common than you might think. For every 20 people you know, one is likely affected by a rare ...
Medindia5d
Rare Disease Day 2025
Rare diseases affect millions, but most remain undiagnosed and untreated. Learn about Rare Disease Day 2025, patient ...
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HTS genetic testing identifies 25% more rare disease risks | World Rare Disease Day
High-throughput genetic testing identifies 25% more rare disease risks, empowering families with early detection & prevention. Learn more this World Rare Disease Day!
Park Record6d
‘Complicated’ Slamdance documentary examines Ehlers-Danlos Syndrome
Filmmaker Andrew Abrahams addresses these issues in his new documentary “Complicated,” which is a World Premiere at the Slamdance Film Festival. The film follows a group of families and their children ...