For the first time, Hospital Kuala Lumpur (HKL) is proudly hosting the annual Rare Disease Day 2025 celebration to raise ...

MADISON, Wis. (WIFR) - For 14 years, Treyson Wallace’s family searched for answers. Born in 2009, Treyson failed a newborn ...

Holly Helm’s life changed forever. “It was like life changed within a blink of an eye,” she explained. “I was completely ...

On the very day Noa was diagnosed, an experimental gene therapy and clinical trial were posted to treat Canavan disease. Noa was only the third patient in the world to be dosed with the gene therapy, ...

Like most children, Morgan enjoys games, showing off her toys, and spending some time on her tablet. But sadly, unlike most children, Morgan is living life with an ultra-rare disease. Her mother, ...

In a symbolic gesture of solidarity, the Rare Disease Ghana Initiative (RDGI) illuminated the Ministry of Health (MoH) building on February 28, 2025, to mark Rare Disease Day.

The Ministry of Health (MoH), alongside key stakeholders, marked Rare Disease Day 2025 on February 28, 2025. The event aimed to raise awareness and advocate for improved healthcare access for ...

Friday is Rare Disease Day, which raises awareness for rare diseases and aims to improve access to treatment and medical representation for individuals with rare diseases and their families.

The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...

President Donald Trump is expected to sign an executive order designating English as the official language of the United ...

An estimated 60,000 people in Cyprus suffer from rare diseases, Health Minister Michael Damianos said on Friday. He pledged that the ministry would move methodically to establish a comprehensive ...

Growth hormone therapy was initiated for 20 children-14 diagnosed with Turner syndrome and six with GH deficiency-under the ...