rare disease day - Search News

Advocates raise awareness on Rare Disease Day in Canada

Buckhannon man raises awareness on Rare Disease Day

Every year since 2008, Rare Disease Day has been held on the last day of February to raise awareness about the research that goes into rare diseases like spinal muscular atrophy (SMA).

Rare Disease Day highlights awareness, research efforts happening in Roanoke and New River Valley

Rare Disease Day, observed on Feb. 28, brings attention to uncommon diseases affecting populations of 200,000 or fewer. In Roanoke, the Wells Fargo Tower will be illuminated in pink, green, purple, and blue—the colors of Rare Disease Day—thanks to a collaboration between The Fralin Biomedical Research Institute at VTC and Wells Fargo Tower.

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Rare Disease Day 2025: Raising Awareness On Stem Cell Breakthroughs

Rare diseases affect multiple organ systems and approximately 50–75% of them affect children. Nearly 80% of all rare diseases are estimated to have an underlying genetic aetiology. The Indian Council of Medical

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After A Five-Tool Career, Bernie Williams Steps To The Plate To Take On Rare Disease Day

Williams, who has performed the National Anthem at baseball stadiums as part of Boehringer Ingelheim’s Breathless campaign, ...

Hospital Kuala Lumpur & Rare Disease Patient Organizations Nationwide Celebrate Rare Disease Day 2025

For the first time, Hospital Kuala Lumpur (HKL) is proudly hosting the annual Rare Disease Day 2025 celebration to raise ...

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World Rare Disease Day 2025: Apollo Navi Mumbai Saves 4-Year-Old With Chediak-Higashi Syndrome Via Life-Saving Bone Marrow Transplant

On World Rare Disease Day, Apollo Hospital Navi Mumbai highlighted a rare medical success story, treating a four-year-old ...

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Group at new Mount Sinai center aims to provide diagnosis to those living with rare diseases

In observance of Rare Disease Day, a new effort is underway to finally provide answers to the estimated 300 million people ...

As Virginia Tech honors Rare Disease Day, researchers question the future of long-term funding

Roanoke's Wells Fargo Tower is lit up Friday night to bring attention to illnesses that impact one in every ten Americans.

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'It’s As if Aiden Knows He Won’t Be Here Forever'—One Mother's Fight to Help Her Son Battle His Rare Disease

On Rare Disease Day, it's important to understand the battles families face to get the help for their kids, and how you can ...

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Avidity Biosciences Honors Rare Disease Day® and Global Efforts to Support People and Families Impacted by Rare Neuromuscular Diseases

Avidity Biosciences, Inc. (Nasdaq: RNA), a biopharmaceutical company committed to delivering a new class of RNA therapeutics ...

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