Barcelona-Based Neurosurgical Specialist Awarded Designation Of International Center Of Excellence For Ehlers-Danlos Syndrome
The International Ehlers-Danlos Society recognises the clinic of Dr Vicenç Gilete, Barcelona neurosurgeon, as the first and only Center of Excellenc ...
'Doctors said symptoms were in my head, but I knew they were wrong'
A woman who was told for years that symptoms were anxiety or just in her imagination lost 20lbs because of the nausea caused ...
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Tulsa teenager diagnosed with rare disease; asking for help funding dental surgery
A Tulsa teenager has been diagnosed with a rare condition called Ehlers-Danlos Syndrome. The disease can cause one to lose ...
I’ve lived off Ritz crackers every day for 3 YEARS due to debilitating condition – only 2 other foods are ‘safe’ for me
A WOMAN who has been living off Ritz crackers for the past three years said only two other foods are “safe” for her to eat.
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Chronic Pain and Daily Challenges in Individuals With HSD/hEDS
The following is a summary of “Impact of Pain on Everyday Activities of People With Hypermobility Spectrum Disorders or Hypermobility Ehlers Danlos Syndrome,” published in the February 2025 issue of ...
How Yours Truly's Mikaila Delgado tours and creates with Ehlers-Danlos syndrome
Touring and performing as a musician is hard on the body for anyone in the industry, but when you have an invisible disability, it's all-encompassing.
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Efficacy of Irbesartan in Celiprolol-Treated Patients With Vascular Ehlers-Danlos Syndrome
Centre de Référence Pour le Syndrome de Marfan et Apparentés, Centre Aorte Timone, Université Aix-Marseille, Marseille, France (L.B.-T.). PARCC, Institut National de la Santé et de la Recherche ...