An ‘Impossible’ Disease Outbreak in the Alps
In one tiny town, more than a dozen people were diagnosed with the rare neurodegenerative disease ALS. Why? I n March 2009, ...
Mother with rare ALS touts 'miracle drug' that has stopped her disease
Raziel Green, 52, an active runner and mother of two, was diagnosed with a rare form of ALS in 2017. Since starting a ...
University at Buffalo20m
Empire AI projects showcase UB’s commitment to harnessing AI for the public good
With Empire AI, UB is helping people with ALS, improving medical imaging, boosting mental health resources and much more.
Medindia20d
QALSODY™ (tofersen injection) Receives Conditional Marketing Authorization from Health Canada as the First ALS Treatment Targeting a Genetic Cause
SOD1-ALS is an ultra-rare, genetic form of ALS, comprising approximately 2% of people with ALS.4 "We're thrilled to bring forward QALSODY as a treatment for individuals living with SOD1-ALS ...
New York Post5d
Mother with rare ALS touts ‘miracle drug’ that has stopped her disease
It wasn’t until she saw a third neurologist, who specialized in genetic diseases, that she was diagnosed with the superoxide dismutase 1 (SOD1) gene and amyotrophic lateral sclerosis (ALS).
Regina woman is living proof of 'breakthrough' ALS drug now approved in Canada
A Regina mother who was one of the first ALS patients to test a new treatment is now celebrating its accelerated approval in ...
Physician's Weekly18d
Mendelian Randomization Identifies ALS-Associated Proteins and Key Pathways
The following is a summary of “Mendelian randomization of plasma proteomics identifies novel ALS-associated proteins and their GO enrichment and KEGG pathway analyses,” published in the March 2025 ...
EL PAÍS English8d
A devastating nerve disease stalks a mountain village
Neurologists have grappled with a cluster of amyotrophic lateral sclerosis cases in France, where a fondness for a toxic wild ...