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Learn about the challenges and opportunities of using secondary data in the era of big data and AI, and how to ensure data quality, accessibility, analysis, and reuse.
Secondary data is any data that has been collected by someone else for a different purpose than your own. It can come from various sources, such as government agencies, industry reports, trade ...
Keywords: secondary use, research policy, genetic data, genetic exceptionalism, data protection. Citation: Martani A, Geneviève LD, Pauli-Magnus C, McLennan S and Elger BS (2019) Regulating the ...
A data management plan may also need to consider the use of secondary data in research. Secondary data are intellectual property belonging to another party, so they may only be used with that party's ...
The research involves only information collection and analysis involving the investigator’s use of identifiable health information when that use is regulated under 45 CFR parts 160 and 164, subparts A ...
Using secondary data for research In India, scientific research still banks on primary data, and once researchers have completed each project, they often lock up the data and forget about it. As such, ...
This policy applies to activities that involve the secondary analysis of data (such as medical records, student records, data collected from previous studies, audio/video recordings, etc.) or ...
Health data are being generated in large quantities. However, these data are rarely used beyond their primary purpose in comparison to other industries. Main barriers are privacy and ethical concerns ...
Background: The secondary use of clinical data in data-gathering, non-interventional research or learning activities (SeConts) has great potential for scientific progress and health care improvement.
If we want My Health Record data to be made available for medical research we need to make it opt in, not opt out. We’ll have a smaller dataset, but at least it will be ethically defensible.